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Data Governance Council

Data Governance Council

Owned by Andrea Price Old Account (Deactivated)
Last updated: Jun 06, 2024 by Mindy Hangsleben
2 min read

NACHC has invested in building a governance infrastructure to support a growing body of data-related work occurring in the clinical affairs division. External partners are sharing data with NACHC through an array of projects. As NACHC’s clinical affairs portfolio has reached a critical mass of data sharing projects, the next step is to implement a data governance structure to build trust among data partners and ensure the highest quality work products.

NACHC convened a data governance council in the fall of 2021 to develop and implementing a governance infrastructure for informatics project work. The data governance council is convened to:

  • evaluate and approve or deny requests for data or analyses from internal or external sources;

  • develop, codify, and disseminate policies and procedures to meet emerging data governance needs and align with stakeholder policies, agreements, and processes;

  • consult on the NACHC response to privacy and security incidents related to data sharing or clinical affairs projects;

  • upon request, review data sharing project issues outside of clinical affairs and make recommendations; and

  • ensure long-term, broadly representative data governance for NACHC.

Priority Data Governance Issues

The priority issues that the Data Governance Council is currently focused on are:

  • Developing standard request and DUA processes including revision of the NACHC DUA template and creation of a repository of DUAs and data products from all active projects

  • Documenting the current and target states of data security and privacy policies and procedures for the larger NACHC team and clinical affairs data assets

  • Establishing guiding principles for data use and translating those principles into procedures and governance infrastructure.

Data Governance Council Members

The current members are:

Julia Skapik (chair) (Clinical Affairs)

Margaret Davis (Training and Technical Assistance)

Andy Gulati (Network Relations)

Amy Flowers (Policy and Research)

Meg Meador (Clinical Affairs)

Jesus de los Santos (Information Technology)

External: Greg Raglow (El Rio Health)

External: Andrew Hamilton (AllianceChicago)

Data Governance Council Charter

 

 



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