NACHC is committed to a trusting and mutually beneficial relationship with organizations from whom data are received (‘Data Partners’). Data governance refers to the policies and procedures that instill trust and clearly defined roles and responsibilities between Data Partners and NACHC. The purpose of this webpage is to describe NACHC's perspective on data governance and provide documentation that supports NACHC partners.
NACHC has defined a data governance approach that is customized for each project and Data Partner’s needs. Regardless of the project, NACHC commits to the following:
- NACHC only receives data through HIPAA-compliant secure tools and offers those to Data Partners as part of project participation
- NACHC stores data securely with Amazon Web Services
- NACHC adheres to data management standards and best practices
- NACHC does not attempt to re-identify patients
- NACHC collaborates with Data Partners and project partners to clean, transform, and validate data to ensure accurate interpretation
- NACHC only uses data for approved uses, as defined in the project contract and DUA
- NACHC does not perform analysis beyond the project scope without approval from Data Partners, but when additional opportunities arise, NACHC will bring those opportunities to Data Partners for review
- NACHC presents project data in aggregate form unless Data Partners have agreed to display data at the health center level
- NACHC does not sell data
- NACHC will offer Data Partners the opportunity to review any new work products where their data was used
- NACHC responds to project-related analytic or informational requests from Data Partners
- NACHC will destroy data upon the request of Data Partners who are free to terminate data sharing at any time
Governance Decision-Making
In 2021, NACHC convened a data governance council to establish and operate a data governance infrastructure. The council meets monthly and includes NACHC and external representatives.
Data Governance Documents
Data governance documented prepared by NACHC for external use are available here and include:
- Data Governance Overview
- Data Use Agreement Primer
- Data Governance Council Charter
Questions?
If you have additional questions about NACHC data governance contact XXXXXXXXX