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NACHC has invested in building informatics a governance infrastructure and developing services to support a growing body of data-related work occurring in the clinical affairs division. External partners are sharing their clinical and administrative data with NACHC through an array of informatics projects. As NACHC’s informatics clinical affairs portfolio has reached a critical mass of data sharing projects, the next step is to implement a data governance structure to build trust among data partners and ensure the highest quality work products.

NACHC convened a data governance council in the fall of 2021 as part of developing to develop and implementing a governance infrastructure for informatics project work. The data governance council willis convened to:

• review and discuss internal and external evaluate and approve or deny requests for data or data-related project participation;

• approve or deny data requests from external partners;

• approve or deny requests for access to data stored within the NACHC environment;

• make recommendations regarding data-related project participation;

• define, discuss, approve, document and track new analyses from internal or external sources;

• develop, codify, and disseminate policies and procedures to meet emerging data governance needs and align with stakeholder policies, agreements, and processes;

• consult on the NACHC response to data breaches or vulnerabilities;ensure NACHC data governance policies and processes do not infringe on stakeholder policies, agreements, and processesprivacy and security incidents related to data sharing or clinical affairs projects;

• upon request, review data sharing project issues outside of clinical affairs and make recommendations; and

• ensure long-term, broadly representative data governance for NACHC.

Priority Data Governance Issues

The priority issues that the Data Governance Council is currently focused on are:

• Developing standard request and DUA processes including revision of the NACHC DUA template and creation of a repository of DUAs and data products from all active projects

• Documenting the current and target states of data security and privacy policies and procedures for the larger NACHC team and clinical affairs data assets

• Establishing guiding principles for data use and translating those principles into procedures and governance infrastructure.