NACHC has invested in building informatics infrastructure and developing services to support a growing body of data-related work. External partners are sharing their clinical and administrative data with NACHC through an array of informatics projects. As NACHC’s informatics portfolio has reached a critical mass, the next step is to implement a data governance structure to build trust among data partners and ensure the highest quality work products.
NACHC convened a data governance council in the fall of 2021 as part of developing and implementing a governance infrastructure for informatics project work. The data governance council will:
review and discuss internal and external requests for data or data-related project participation;
approve or deny data requests from external partners;
approve or deny requests for access to data stored within the NACHC environment;
make recommendations regarding data-related project participation;
define, discuss, approve, document and track new policies and procedures to meet emerging data governance needs;
consult on the NACHC response to data breaches or vulnerabilities;
ensure NACHC data governance policies and processes do not infringe on stakeholder policies, agreements, and processes; and
ensure long-term, broadly representative data governance for NACHC.
Governance Council Members
The current GC members are:
Ronald Yee
Julia Skapik (chair)
Julia Skapik
Gervean Williams
Meg Meador
Jennie McLaurin
External: Greg Pappas (FDA)
External: Andrew Hamilton (Alliance Chicago)
Kathy McNamara
Vacheria TutsonAndy Gulati
Governance Council Materials
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Key Data Governance Issues
The priority issues that the Data Governance Council will address in its first year are:
Developing and implementing a systematic process to respond to data requests
Policy and procedures around IRB
Security and privacy policies, procedures, and communications to staff
Revision of the DUA templates and expansion of agreement types to accommodate diverse projectspolicy and procedures on data use, data sharing partnership, request processing, and IRB
Ensuring that NACHC adheres to laws and best practices regarding data security and privacy
Using a standard process for developing and executing data use agreements to clarify the expectations of NACHC, data partners, and other project partners