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This page houses the data governance policies and procedures developed by the NACHC Clinical Affairs team in partnership with other NACHC teams and external partners. These policies and procedures can be applied to any activities where data is received, collected, or generated, referred to as 'data sharing work' hereinafter.

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NACHC organizes and tracks informatics data sharing work in projects. Depending on the scope of the project, a project may have one or multiple datasets from one or more data partners that is housed by NACHC.  Most projects use Confluence to manage information and safely share data through a Confluence website which defines the project team, provides links to relevant project documentation and agreements, location of project data, and tracks project progress.  Projects have regular status meetings. Minutes and meeting materials from status meetings are made available on Confluence.  At the start of each project, a project team is identified and includes members of the data contributor and NACHC staff and documented on the project Confluence page. Additionally, members of the project team who will have access to project data are identified at the project inception. As the project team evolves through the project lifecycle, the project team is updated on Confluence and in project-related documentation, as appropriate.

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Section 4: Other Governance Topics 

Requests

NACHC receives many requests for data that has already been shared with them for an existing project or a request for data related to a new project. Additionally, NACHC receives requests for information partnership meaning a desire from one organization to partner and share data with a health center through support from NACHC.  

Requests for data or information partnerships are evaluated by the GC which meets monthly. Requests can be submitted here. Requests ​must include a detailed description of what data is desired, how the data will be used, the type of use (e.g., research, surveillance, quality improvement or other) and how the request aligns with the NACHC vision. Incomplete requests cannot be evaluated and will be returned to the requester. Requesters will be notified ​of an approval or denial within one week of the GC meeting. ​

For requests of data that NACHC has received for other projects, NACHC is not a data owner but a steward of data from other contributing organizations​. Thus ​a request ​approval from ​NACHC's data governance council is the first in a series of required approvals. Approved request will be shared with the originating data contributor ​and if approved by the data contributor, a data use agreement to define the parameters of the data exchange must be executed before any data can be shared. 
NACHC is facilitator of information partnerships​ rather than a broker of data​. NACHC strongly prefers building an information partnership with the goal of collaboratively developing a data sharing project that is beneficial to all parties involved.  

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