This page houses the data governance policies and procedures developed by the NACHC Clinical Affairs team in partnership with other NACHC teams and external partners. These policies and procedures can be applied to any activities where data is received, collected, or generated, referred to as 'informatics work' hereinafter.
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| Subject matter expertise | Technical assistance | Data management | Analysis services |
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- Providing guidance materials and sharing knowledge with data partners on how best to collect, store, and use their data
- Sharing best practices from the field
- Creation of tools
| - Coaching and assisting data partners to improve the quality of their data collection and use
- Educational programming
- Coaching external and internal requestors in refining analytic requests to be more actionable and purpose driven
- Improving the use and quality of analytic planning and documentation
| - Receiving, ingesting, standardizing and normalizing, cleaning, and transforming data from partners into a format and structure best suited for analysis
- Mapping and normalizing disparate data structures and formats into a common data model
- Conducting data quality activities and identifying data quality issues
| - Performing analysis on one or multiple datasets to assess a prescribed outcome or outcomes (e.g., the percent of women who received contraception counseling)
- Calculate a predefined quality measure (e.g., the percent of screening-eligible patients who were screened)
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Section 4: Other Governance Topics
Requests
NACHC receives many requests for data that has already been shared with them for an existing project or a request for data related to a new project. Additionally, NACHC receives requests for information partnership meaning a desire from one organization to partner and share data with a health center through support from NACHC.
Requests for data or information partnerships are evaluated by the GC which meets monthly. Requests can be submitted here. Requests must be well defined meaning that they include a detailed description of what data is desired, how the data will be used, the type of use (e.g., research, surveillance, quality improvement or other) and how the request aligns with the NACHC vision and benefits health centers. Incomplete requests cannot be evaluated by the and will be returned to the requester. Requesters will be notified of an approval or denial within one week of the data governance council meeting.
For requests of data that NACHC has received for other projects, NACHC is not a data owner but a steward of data from other contributing organizations
. Thus a request approval from
NACHC's data governance council is the first in a series of required approvals. Approved request will be shared with the originating data contributor
and if approved by the data contributor, a data use agreement to define the parameters of the data exchange must be executed before any data can be shared.
NACHC is facilitator of information partnerships rather than a broker of data. NACHC strongly prefers building an information partnership with the goal of collaboratively developing a data sharing project that is beneficial to all parties involved.
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