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Term

Definition

Data use agreement

A Data Use Agreement (DUA) is a binding contract governing access to and treatment of nonpublic or sensitive data provided by one party (a “Provider”) to another party (a “Recipient”). DUAs are often required by external parties before they permit data to be received by NACHC and can also be necessary for NACHC data to be disclosed to another organization. DUA terms and conditions vary depending on the laws and regulations governing the specific type of data to be shared, as well as the policies and/or requirements of the Provider and Recipient. Formal agreements in these cases help to avoid misunderstandings and disputes over the use and storage of data, appropriate access and security measures, and other important matters, including publication rights and ownership of results.

NACHC convened a data governance council in the fall of 2021 as part of developing and implementing a governance infrastructure for informatics project work. 

NACHC has invested in building informatics infrastructure and developing services to support a growing body of data-related work. External partners are sharing their clinical and administrative data with NACHC through an array of informatics projects. As NACHC’s informatics portfolio has reached a critical mass, the next step is to implement a data governance structure to build trust among data partners and ensure the highest quality work products.

Governance Council Members

The current GC members are:

  1. Ronald Yee (chair)
  2. Julia Skapik
  3. Gervean Williams
  4. Meg Meador
  5. Senior fellow (Kathy to pick)
  6. External: Carolyn Neal (CDC)
  7. External: Andrew Hamilton (Alliance Chicago)

Governance Council Materials

View file
nameNACHC GC Charter_20210927.docx
height250